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1 "Nova Yustisia"
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Original Article
[English]
The Burden Experience of Family Caregiver of Older Adults with Chronic Illness
Nova Yustisia, Titin Aprilatutini, Tuti Anggriani Utama, Mahmasoni Masdar
Res Community Public Health Nurs. 2023;34(2):85-95.   Published online June 30, 2023
DOI: https://doi.org/10.12799/rcphn.2022.00304
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  • 7 Citations
AbstractAbstract PDF
Purpose
This study aims to find out further about the burden on families in undertaking caregiving for the elderly with chronic illnesses.
Methods
A qualitative study was developed using in-depth interviews with 12 family caregivers selected by purposive sampling in July 2022. The thematic analysis was then carried out using the Colaizzi method, and N-Vivo 12 Qualitative Data Analysis Software was used to assist with the content analysis.
Results
The result from the experience interview analysis of caregivers participating in this study were 54 codes which were categorized into thirteen categories. Then, they were derived into four themes, as follows: 1) Physical burden of the caregivers for the elderly with chronic illness, 2) Psychological burden of the caregivers for the elderly with chronic illness, 3) Obstacle of caregivers for the elderly with chronic illness, 4) The state of caregivers who perform caregiving for the elderly with chronic illness.
Conclusion
The experience of caregivers in undertaking caregiving for the elderly with chronic disease has many obstacles, such as physical, psychological, and economic burdens. Caregivers often find positive aspects of their experiences while caregiving for the elderly, although their burden also constantly increases. Health facilities should pay serious attention to family caregivers and facilitate programs that can help reduce the burden on family caregivers.

Citations

Citations to this article as recorded by  
  • Mastering the Art of Caregiving: Instructional Approaches to Teaching Healthcare‐Related Procedural Skills to Informal Caregivers—An Integrative Review
    An Ling Siew, Esther Yin Hui Chew, Ee‐Yuee Chan, Elaine Kee Chen Siow
    Journal of Advanced Nursing.2026; 82(1): 272.     CrossRef
  • Navigating caregiving challenges: the interplay of health literacy and resilience in families of chronically ill older adults
    Ibrahim Alasqah, Mona Metwally El-Sayed, Ahmed Hashem El-Monshed, Mahmoud Abdelwahab Khedr, Manal Mohammed Hawash, Rahma Mohamed Abdelrahman, Mohamed Hussein Ramadan Atta, Shaimaa Mohamed Amin
    Frontiers in Public Health.2026;[Epub]     CrossRef
  • Psychological distress among family members of patients with cardiovascular diseases in critical care units: A cross-sectional study
    Malakeh Z. Malak, Anas Shehadeh, Ronza Shawawreh, Ahmad Ayed, Loai Abu Sharour, Jihan Salouk
    Journal of Health Psychology.2026;[Epub]     CrossRef
  • Enhancing Communication and Empathy Skills in Geriatric Care: Nurses' Reflections on Simulation‐Based Training for Patient Interaction and Education
    Sobhia Ahmed Abdel Kader Mohammed, Mostafa Shaban
    Journal of Clinical Nursing.2025;[Epub]     CrossRef
  • Spirituality Well-Being, Health Status, Nutritional Status and Their Relation to Illness Perception in Chronic Obstructive Pulmonary Disease
    Scholastica Fina Aryu Puspasari, Margaretha Kurniastuti, Kosen d'Aristo McGenggeng
    Jurnal Berita Ilmu Keperawatan.2025; 18(2): 193.     CrossRef
  • Experiences of family caregivers of a hospitalized person
    Juan Sebastian Lozano-Mosos, Soraya Colina-Matiz, Nathalia Aguirre-Morales, Fanny Violeta Osorio-Medina, Lorena Chaparro-Diaz, Sonia Patricia Carreño-Moreno
    Revista Ciencia y Cuidado.2025;[Epub]     CrossRef
  • Relationship between Care Burden and Health Anxiety in the Family Caregivers of the Older Adults with Alzheimer’s Disease
    Mohammad Sadegh Sargolzaei, Daniyal Kohestani, Tahereh Alsadat Khoubbin Khoshnazar, Hossein Asghari Asl
    Ageing International.2024; 49(2): 280.     CrossRef

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