Purpose The decline in cognitive abilities among individuals with Alzheimer’s disease significantly impacts their Activities of Daily Living (ADLs), creating challenges and stress for their caregivers. This study aimed to investigate the priorities of family caregivers of community-dwelling individuals with Alzheimer's disease concerning the preservation of their loved ones' ADLs.
Methods We employed a cross-sectional design with a best-worst scaling approach (BWS), and developed a BWS questionnaire utilizing the 10 daily living items from the Disability Assessment for Alzheimer’s Disease scale. This questionnaire was administered to 132 caregivers of individuals with Alzheimer's disease. Data analysis was conducted using SPSS WIN 21.0 and the R statistical program.
Results The results revealed that "using the toilet without accidents" emerged as the top-ranked ADL that family caregivers preferred to preserve for the longest duration among individuals with Alzheimer's disease living at home. In contrast, "Managing money appropriately" was identified as a daily living activity considered relatively less critical to preserve. The study further indicated a preference among caregivers for preserving physical ADLs over instrumental ADLs.
Conclusion This research provides clinical evidence shedding light on the priorities of family caregivers in preserving the functional abilities of individuals with Alzheimer's disease within the community.
PURPOSE This study tries to identify and clarify the concept of fear of dementia. METHODS The hybrid model method was used to perform a conceptual analysis of fear for dementia. Results from both the theoretical review of 35 studies and the field study with 8 community-dwelling older adults were included in the final stage. RESULTS Fear for dementia had 4 dimensions with 14 attributes including cognitive factors (direct experience of precursor symptoms of dementia, indirect experience of dementia, preliminary knowledge of dementia, impossibility of cognitive control, and confidence in dementia), emotional factors (negative feelings and pessimistic thoughts), social factors (social isolation, economic instability, embarrassment), and behavioral factors (existing health problems, making efforts to maintain health, impossibility of body control, peripheral autonomic nervous system response) along with 34 indicators. CONCLUSION This study is meaningful because it reveals the attributes of Korean elderly adults' fear for dementia. In addition, the results may serve as a basis for the early assessment and management of fear for dementia.
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Development and Psychometric Evaluation of a Fear of Dementia Scale for Community-Dwelling Older Adults Minkyung LEE, Dukyoo JUNG Journal of Nursing Research.2020; 28(3): e94. CrossRef