Purpose Because family caregivers provide a considerable amount of daily care to persons living with dementia, they are at risk of experiencing poor life satisfaction. Therefore, this study aimed to examine factors associated with the life satisfaction of family caregivers of persons living with dementia.
Methods Data were collected through surveys from family caregivers (N=183), and a multiple linear regression analysis was conducted to examine the factors associated with their life satisfaction.
Results The final model indicated that perceiving support from intimate others as helpful (β=.22, p<.001) was associated with greater life satisfaction, whereas a negative relationship with the care recipients (β=−.15, p=.046) and greater psychological burden (β=−.40, p<.001) were associated with poorer life satisfaction (Adjusted R2=0.49, F=20.42, p<.001).
Conclusion Public policy should focus on providing greater support to family caregivers. Furthermore, healthcare professionals should implement intervention programs for family caregivers that focus on lowering their psychological burden.
Purpose The decline in cognitive abilities among individuals with Alzheimer’s disease significantly impacts their Activities of Daily Living (ADLs), creating challenges and stress for their caregivers. This study aimed to investigate the priorities of family caregivers of community-dwelling individuals with Alzheimer's disease concerning the preservation of their loved ones' ADLs.
Methods We employed a cross-sectional design with a best-worst scaling approach (BWS), and developed a BWS questionnaire utilizing the 10 daily living items from the Disability Assessment for Alzheimer’s Disease scale. This questionnaire was administered to 132 caregivers of individuals with Alzheimer's disease. Data analysis was conducted using SPSS WIN 21.0 and the R statistical program.
Results The results revealed that "using the toilet without accidents" emerged as the top-ranked ADL that family caregivers preferred to preserve for the longest duration among individuals with Alzheimer's disease living at home. In contrast, "Managing money appropriately" was identified as a daily living activity considered relatively less critical to preserve. The study further indicated a preference among caregivers for preserving physical ADLs over instrumental ADLs.
Conclusion This research provides clinical evidence shedding light on the priorities of family caregivers in preserving the functional abilities of individuals with Alzheimer's disease within the community.
Purpose Most of the currently used concepts and measurements of social support have been relevant for general population. The main purpose of this study is to conduct the concept analysis of perceived social support(PSS) of family caregivers for people with dementia.
Methods: This study adopted the Walker and Avant concept analysis methodology.
Results: Findings from this concept analysis suggested four defining attributes of PSS of family caregivers for people with dementia: 1) PSS is help or assistance that family caregivers perceive as available when needed; 2) PSS is offered through socio-ecological structure; 3) PSS has a specific function to meet the needs of family caregivers; and 4) PSS includes quality aspects where family caregivers choose, use, or evaluate it. Borrowing from the socio-ecological model, this study proposed the structural aspects of PSS. This study also identified functional aspects of PSS, such as emotional support, informational support, appraisal support, and practical support. Finally, this study assessed quality aspects of PSS, such as satisfaction, timeliness, usefulness, accessibility, and coordination.
Conclusion: Focusing on family caregivers for people with dementia, we proposed a new model of PSS. The present study helped refine and clarify the concept of PSS of family caregivers for people with dementia. The results of this study may also contribute to promoting the development of more effective instruments for the concept.
Citations
Citations to this article as recorded by
Examining Characteristics and Service Utilization of South Korean Home Health Care Patients: Secondary Analysis of 10-Year Data From a Tertiary Hospital Hana Lee, Aeri Kim, Hyunsook Heo, Jisoo Lee, Kyungmi Woo Home Health Care Management & Practice.2023; 35(1): 21. CrossRef
Experience of family caregivers using dementia management programs for patients with dementia during COVID-19: Based on focus group interviews Doonam Oh, Jeonghae Hwang, Seonghee Jeong Korean Journal of Health Education and Promotion.2022; 39(5): 101. CrossRef
Purpose The purpose of this study was to verify influencing factors affecting service quality provided by caregivers working for the elderly with dementia. Methods Data were collected using a self-reported questionnaire from 214 caregivers in a long-term care facility in D city. The data were analyzed with service quality, dementia knowledge, work value, and job performance confidence. For data analysis, the descriptive statistics, t-test, one-way ANOVA, Pearson correlation coefficients, and multiple regression were performed using SPSS/WIN 21.0 program. Results There were significant differences in service quality depending on the health status. Factors influencing service quality were work value, and job performance confidence with R2 value of 38%. The highly influencing factors were work value, and job performance confidence. Conclusion The results of this study indicate that the effort to improve the service quality of caregivers should focus on work value and job performance confidence.
Citations
Citations to this article as recorded by
The subjectivity of care workers’ perception on remaining functional ability care: A Q methodology approach Hyunjung Doo, Soonmi Park Journal of Korean Gerontological Nursing.2023; 25(1): 56. CrossRef
PURPOSE There has been a growing recognition that person-centered care enhances the quality of life of nursing home residents with dementia. This study was conducted to develop a person-centered dementia care online education program for direct care staff in long-term care facilities. METHODS Delphi method with expert group was used to validate contents. We developed 61 draft items based on literature review. Twenty experts participated in consecutive three round surveys including 5-point Likert scale questions and open-ended questions. Based on experts' opinions, the content validity ratio for content validity and the coefficient of variation for stability were calculated. RESULTS Three-round Delphi surveys and additional feedback from the expert panel established a consensus of core contents: 1) dementia (7 categories), 2) person-centered care (6 categories), 3) communication (8 categories), and 4) behavioral and psychological symptoms of dementia (6 categories). Specific sub-categories in each category were differentiated according to the job qualifications (65 sub-categories for registered nurses, 64 sub-categories for nursing aids, and 41 sub-categories for personal care workers). CONCLUSION This delphi study identified person-centered dementia education curricula, in which the person-centered approach should be a key policy priority in Korean long-term care system. Now it is urgently needed to develop education programs utilizing online platforms that enable efficient and continuous learning for long-term care staff, which can contribute to behavior changes in the person-centered dementia care approach and improvement of care quality in long-term care facilities.
Citations
Citations to this article as recorded by
Moral sensitivity and person‐centred care among mental health nurses in South Korea: A cross‐sectional study Sun Joo Jang, Eun Hye Kim, Haeyoung Lee Journal of Nursing Management.2022; 30(7): 2227. CrossRef
Personhood Communication with Persons with Dementia: Concept Analysis Jiyeon Kim, Jun-Ah Song Journal of Korean Gerontological Nursing.2021; 23(4): 406. CrossRef
Validity and Reliability of the Korean Version of Person-Centered Practice Inventory-Staff for Nurses Sohyun Kim, Sunghee H Tak Journal of Korean Academy of Nursing.2021; 51(3): 363. CrossRef
Development and Evaluation of a Person-centered Dementia Care Education Program for Nursing Home Staff Eun-Hi Kong Journal of Korean Gerontological Nursing.2020; 22(3): 247. CrossRef
PURPOSE This study tried to identify changes in family burden after the introduction of the long-term care insurance and to examine the factors influencing subjective and objective caring burden and depression of family caregivers of elders receiving home-based long-term care. METHODS Data were collected from 203 family caregivers of elders from August 1 to 31, 2015 using questionnaires. They were analyzed in descriptive statistics, t test, ANOVA test, and multiple regression analysis. RESULTS The mean score of depression was 7.24, which suggested mild depression level. The subjective family burden was 2.71 and the objective burden 3.04. The factors affecting depression included subjective burden (t=5.08, p < .001), objective burden (t=2.80, p=.006), time of elderly care per day (t=−3.61, p < .001), caregiving duration (t=3.33, p=.001), age (t=3.13, p=.002), family relationship (t=2.48, p=.014), and economic status (t=1.99, p=.047). CONCLUSION The family burden was most important influencing factor on caregiver's depression. Therefore, services and supports to alleviate caregivers' burden in the home-based care should be added to long-term care.
Citations
Citations to this article as recorded by
The moderating effect of care time on care-related characteristics and caregiver burden: differences between formal and informal caregivers of dependent older adults Eunmi Oh, SeolHwa Moon, Daum Chung, Rina Choi, Gwi-Ryung Son Hong Frontiers in Public Health.2024;[Epub] CrossRef
The effect of self-rated health on depressive symptoms in Chinese older adults: The mediating role of social participation and spouse health Chi Zhang, Yinan Zhao, Xiaoyang Li, Yongzhen Guo, Ruotong Peng, Xiao Wan, Qin Zhou, Juan Yang, Siliang Wu, Hui Feng Geriatric Nursing.2024; 59: 411. CrossRef
Working Conditions Affecting Home Care Workers’ Stress and Turnover Intention Samsik Lee, Gyeongrim Oh Journal of Applied Gerontology.2023; 42(4): 717. CrossRef
Relationship between filial obligation and caregiver depression among adult children: A systematic review and meta‐analysis Yuqin Pan, Ruyi Chen, Dongliang Yang Nursing Open.2023; 10(6): 3474. CrossRef
PURPOSE This study tries to explore experiences with a special rating dementia service among family caregivers of elderly people with dementia. METHODS The participants were 11 family caregivers of elderly people with dementia and had used a day-care service from the special rating dementia service for more than 3 months. Data were collected through individual in-depth interviews and analyzed using content analysis. RESULTS Three categories emerged: “reminiscence of an entangled lifeâ€, “feeling relieved from a stifled lifeâ€, and “hope for a better life through help and support†with 8 sub-categories and 23 codes. By using the special rating dementia service, the participants experienced relief from the burden of caring for their elderly family member with dementia and restored their social relations or family relationships. They experienced a positive transition in which their caring for elderly family members with dementia was integrated into their daily lives, and they expressed their desires for better policies. CONCLUSION These findings imply the importance and necessity of the special rating dementia service. Practical and systematic family support programs are necessary and proactive publicity activities by the government and public agencies are suggested to ensure that family caregivers can easily use the special rating dementia system.
PURPOSE The purpose of this study is to identify factors influencing burnout in primary family caregivers of Home Health Care Patients. METHODS Data were collected from 121 primary family caregivers of home health care patients in three different hospitals in ‘D’ metropolitan city and the study was conducted from August 10, 2016 to January 17, 2017. The data were analyzed using descriptive statistics, t-test, ANOVA, Pearson's Correlation Coefficient, Stepwise Multiple Linear Regression. RESULTS Mean scores for the nursing needs of the participants were 3.54±0.79, the family functions were 1.24±0.58, the burnouts were 2.74±0.49. The burnouts were positively correlated with the nursing needs but inversely correlated with the family function. The factor that had the greatest influence on the burnouts of primary family caregivers of Home Health Care was family function (β=−.245, p=.001), followed by patients' daily activity (β=−.213, p=.014), age (β=.208, p=.032), monthly nursing services cost (β=−.196, p=.044) and nursing needs (β=.129, p=.014). The Explanatory Power of Models was 23%. CONCLUSION Individually customized home care nursing intervention programs are required to be provided in accordance with patient's family function and daily activity, monthly home care nursing service cost, nursing needs and general characteristics of primary caregivers of Home Health Care Patients such as their age, the number of family members living together, sex and the name of disease.
Citations
Citations to this article as recorded by
Roles and Problems of Stroke Caregivers: A Qualitative Study in Yogyakarta, Indonesia Paryono Muhrodji, Hendrawan Dian Agung Wicaksono, Sekar Satiti, Laksono Trisnantoro, Ismail Setyopranoto, Amelia Nur Vidyanti F1000Research.2022; 10: 380. CrossRef
Roles and Problems of Stroke Caregivers: A Qualitative Study in Yogyakarta, Indonesia Paryono Muhrodji, Hendrawan Dian Agung Wicaksono, Sekar Satiti, Laksono Trisnantoro, Ismail Setyopranoto, Amelia Nur Vidyanti F1000Research.2021; 10: 380. CrossRef
Influence of Self-care on Burnout in Primary Family Caregiver of Person with Dementia Jeong Hwa Kwon, Gwi-Ryung Son Hong Journal of Korean Academy of Nursing.2021; 51(2): 217. CrossRef
PURPOSE This study aims to investigate the effects of an intervention of self-feeding for elderly residents who were eating with assistance or eating by himself/herself with spilling food. METHODS The Participants were 11 elderly people and 6 formal caregivers from 7 nursing homes in Korea. The intervention was to use the spoon and chopstick sets designed for compensating the weakened eating function. Both quantitative and qualitative data were collected through observation, structured questions, and in-depth interviews. RESULTS The mealtime was significantly increased by 3.2 minutes (p=.011) after the intervention. Three themes were extracted for the meaning of self-feeding expressed by the elders; fighting alone for self-feeding, pride of participating in the study, and burden for self-feeding and research participation. Caregivers expressed the meaning of the elder's self-feeding such as the regret of missed chances, facilitating rehabilitation, the increase of the eating pleasure and quality of care, and ambivalence. CONCLUSION Self-feeding has become an opportunity to recognize life values for the elders in nursing homes; for the caregivers, to reconsider caring of the elderly. Posture and eating utensils were also important to improve self-feeding skills.
Citations
Citations to this article as recorded by
Structure Healthcare Standards and Criteria That Contribute to the Care of Residents in Homes for the Elderly: A Narrative Review Victor Mathias, Ethelwynn L. Stellenberg, Mariana van der Heever Journal of Aging and Environment.2024; 38(4): 367. CrossRef
PURPOSE The objective of this study was to investigate the relations among psycho-social factors regarding child neglect and abuse using the data from the 2013 Korea National Survey on Children and Youth. METHODS Data from a sample of 1,062 primary caregivers with young children were analyzed with the SPSS and AMOS programs to examine the interrelationships among depression, parenting stress, marital satisfaction, parent-child attachment, and child neglect or maltreatment. RESULTS Depression, stress, and attachment had a direct influence on child neglect and abuse. Satisfaction with marital relationship, parenting stress, and attachment were found to play mediating roles in accounting for child neglect and abuse, explaining 12% of the variance. The results of multi group path analysis showed that some coefficients were different according to the age group of the children. For caregivers with infants, parenting stress did not predict either attachment or child maltreatment, whereas for caregivers with toddlers, depression did not have a significant effect on attachment. CONCLUSION In order to prevent child maltreatment, efforts should be made to develop community-based psycho-social support interventions focused on marital relationship as well as parent-child dyads and to provide practical child care support.
Citations
Citations to this article as recorded by
Risk factors for child maltreatment in South Korea: An investigation of a nationally representative sample Jaejin Ahn, Joan P. Yoo Asian Social Work and Policy Review.2019; 13(3): 282. CrossRef
Validation of the Korean Version of the Maternal Postpartum Attachment Development Scale for Mothers of Children who were in a Neonatal Intensive Care Unit Ah Rim Kim, Young Ran Tak Korean Journal of Child Studies.2018; 39(1): 129. CrossRef
PURPOSE This study attempted to identify the effectiveness and substantiality of a dementia education program for family caregivers of the demented elderly. METHODS This quasi-experimental study using a nonequivalent control pretest-posttest design was carried out from April 15 to July 29 in 2012 with 137 subjects divided into an experimental group (n=70) and a control group (n=67). This study examined the subjects' general characteristics, and evaluated their nursing method four times, respectively, before the intervention, right after the intervention, and 2 and 4 weeks after the intervention, and then analyzed collected data through t-test and chi2-test. RESULTS In the experimental group that had received the dementia education, the nursing method score was significantly higher right after the intervention (t=8.33, p<.001) and 2 weeks after the intervention (t=8.01, p<.001) than before the intervention, but their score 4 weeks after the intervention was not significantly different from that of the control group (t=1.08, p=.28). CONCLUSION The dementia education was found to be effective in improving the nursing method of family caregivers of the demented elderly. This study implies that further follow-up dementia education is necessary between 2 and 4 weeks to maintain the effectiveness.
Citations
Citations to this article as recorded by
Comparison of Sleep Quality between Families of Dementia Patients and General Population in Community: Analysis with the Korea Community Health Survey Mina Kim, Young-Hoon Lee Korean Journal of Health Promotion.2023; 23(3): 139. CrossRef
The effect of a comprehensive mobile application program (CMAP) for family caregivers of home‐dwelling patients with dementia: A preliminary research Eunsil Park, Heeok Park, Eun Kyung Kim Japan Journal of Nursing Science.2020;[Epub] CrossRef
Comparing the Needs of Family Caregivers and Program Providers in Long-Term Care in Terms of Family Support Program Myonghwa Park, Younghye Go, Miri Jeong, Eun-Jeong Han Korean Journal of Adult Nursing.2019; 31(1): 14. CrossRef
The Effects of a Support Program for Family Caregivers of Elderly with Dementia on Empowerment and Attitudes toward Dementia So Yoon Kim, Seonghee Jeong Journal of Korean Academic Society of Nursing Education.2019; 25(1): 103. CrossRef
Factors associated with Burden of Family Caregivers of Home-dwelling Elderly People with Dementia: A Systematic Review and Meta-analysis Eun Kyung Kim, Heeok Park Korean Journal of Adult Nursing.2019; 31(4): 351. CrossRef
PURPOSE This study was conducted to evaluate the effect of a social support program on family caregivers' role strain in elderly long-term home care. METHODS The research adopted a non-equivalent control group pretest-posttest design. The number of participants was 25 in the experimental group and 25 in the control group sampled among family caregivers in elderly long-term home care. The experimental group participated in a 10-session social support program, which consisted of physical, emotional, informational, and material support. The effect of the program was evaluated by measuring family caregivers' role strain. RESULTS The experimental group showed a significant decrease in family caregivers' role strain in elderly long-term home care. CONCLUSION The result suggests that the social support program was effective in decreasing family caregivers' role strain in elderly long-term home care. There is a need to develop more effective and systematicsocial support programsfor family caregivers of elderly long-term home care.
Citations
Citations to this article as recorded by
The Effects of a Support Program for Family Caregivers of Elderly with Dementia on Empowerment and Attitudes toward Dementia So Yoon Kim, Seonghee Jeong Journal of Korean Academic Society of Nursing Education.2019; 25(1): 103. CrossRef
Comparing the Needs of Family Caregivers and Program Providers in Long-Term Care in Terms of Family Support Program Myonghwa Park, Younghye Go, Miri Jeong, Eun-Jeong Han Korean Journal of Adult Nursing.2019; 31(1): 14. CrossRef
PURPOSE The purpose of this study was to explore the experiences of family caregivers who care for the elderly under Long-term Care Insurance. METHODS Data were collected using focus group interviews and analyzed using a phenomenological approach. The four focus groups consisted of eight caregivers, two social workers and three nurses in B city, Korea. RESULTS Five themes were identified: 'Obtaining a care-helper certification for employment', 'Taking care of the elderly in their homes', 'Difficulties due to life changes', 'Difficulties due to reduced wages' and 'Dissatisfaction with the Long-term Care Insurance operating system'. CONCLUSION The results of this study demonstrate that the long-term care system for family caregivers faces many systematic challenges in providing care for the elderly harmoniously in their home. To help them succeed in their tasks, Long-term Care Insurance system must offer respite and support programs to family caregivers.
Citations
Citations to this article as recorded by
Influence of home care services on caregivers' burden and satisfaction Eun‐Young Kim, Hyun‐E Yeom Journal of Clinical Nursing.2016; 25(11-12): 1683. CrossRef
Effects of family caregivers on the use of formal long‐term care in South Korea E.‐Y. Kim, E. Cho, N.‐J. Lee International Nursing Review.2013; 60(4): 520. CrossRef
PURPOSE The purpose of this study was to investigate agitation in home-dwelling persons with dementia and coping behaviors of primary family care-givers to agitation. METHODS The research was designed as a descriptive study. A total of two hundred and five subjects had participated in this study. To measure agitation in persons with dementia, Cohen-Mansfield Agitation Inventory was used. To measure coping behaviors of primary family care-givers to the agitation, a questionnaire was used. Descriptive statistics, t-test, ANOVA, Scheffe test were used to answer the research objectives. RESULTS 'Repetitive mannerisms' and 'repeating sentences' were the most commonly occurred agitation in home-dwelling persons with dementia. 'Leaving the situation', 'allowing certain time', and 'soothing by talking' were the most common coping behaviors occurred in primary care-givers. CONCLUSION The findings of the current study would provide meaningful data to develop nursing programs to control agitation for home-dwelling persons with dementia and education programs for primary care-givers to cope with persons' agitation.
PURPOSE The purpose of this study is to investigate verbal, physical and sexual violence to caregivers in nursing home workplaces. METHODS This cross-sectional study was done from October 17 to 31, 2011 at eight randomly selected nursing homes in Seoul and one nursing home in Gyeonggi, South Korea. This study explored their responses to violence and violent situations, and then investigated on how caregivers coped with workplace violence. RESULTS The results of this study show that most caregivers in nursing homes experience some form of violence. Verbal violence was more frequent than physical or sexual violence. Verbal and physical violence occurred most often while they were changing the clothes of patients and sexual violence occurred most often while they were showering patients. After experiencing violence, caregivers most often dealt with the situation by informing their colleagues of what was happened. CONCLUSION These results suggest that institutional and administrative measures must be implemented to increase the prevention of violence against caregivers and to improve effective measures to deal with violence once it has occurred. Violence in nursing homes can be reduced through the combination of appropriate responses by caregivers and proper education of both patients and caregivers.
Citations
Citations to this article as recorded by
Relationship between Experience of Client Violence and Turnover Intention among Workers in Long-Term Care Facilities for Older Adults: Focusing on Nurses, Social Workers, and Care Workers Seunghoon Choi, Hyeri Shin, Minah Lee, Kimyung Han Nursing Reports.2023; 13(1): 549. CrossRef
The Experiences of Long Term Care Workers Who care for People with dementia at Home Bongsook Yih Journal of the Korea Academia-Industrial cooperation Society.2016; 17(2): 394. CrossRef
Influence of Job Stress, Coping Strategies on life satisfaction in long-term care workers -focused in Gyeonggi-do- Hyemin Hwang, Juok Kim Journal of the Korea Academia-Industrial cooperation Society.2015; 16(9): 6152. CrossRef